Sporting Clays Shotgun Event to Benefit Patients With Cystic Fibrosis
— In Memory of Ron Allen —
SHOOT FOR THE CURE Banquet Thursday, May 7, 2020
LIVE / SILENT AUCTION
O’Malley’s On The Green • 3651 O’Malley Rd, Anchorage, AK 99507
5:30 PM -9:30 PM
Sporting Clays Event • Friday, May 8, 2020Birchwood Recreation Shooting Park
100 TARGET WALK-THROUGH
“Can you Say Cystic Fibrosis?”
“65 Roses” is what children with cystic fibrosis (CF) are taught to call their disease. Try it, “65 Roses, 65 Roses.” “Cystic Fibrosis”
Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1965 after learning that her three little boys had CF. Her duty was to call every civic club, social and service organization seeking financial support for CF research (much as we do today.) Mary’s 4 -year old son Ricky, listened closely to his mother as she made each call.
After several calls, Richard came into the room and said to his Mom, “I know what you are working for.” Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had cystic fibrosis. With some trepidation, Mary asked, “What am I working for, Ricky?” He answered, “You are working for 65 Roses.”
Mary was speechless. He could not see the tears running down Mary’s cheeks as she stammered, “Yes Ricky, I’m working for 65 Roses.”
Since 1965, the term “65 Roses” has been used by children of all ages to describe their disease.
501(c)3 Tax ID: 80-0593297
In memory: Co-founder Ronnie Allen
(3-6-1958 – 8-31-2011)
About Shoot For The Cure
SFTC was co-founded in 2006 by Ronnie Allen and Karen Rey. Karen’s daughter has cystic fibrosis so both knew first hand the effects of this devastating disease. After hearing a story of a young man in Alaska, who needed a lung transplant, was set to travel for the surgery; due to logistics of Alaska’s remoteness and the inability for a caregiver to accompany him he unfortunately died without being able to have the transplant. This was a motivating factor in starting a fundraising opportunity. Needs of Alaskans can be more difficult because of the distance for travel, the harsh weather, and lack of resources. Both Ron and Karen loved to shoot sporting clays, and felt that a sporting clays FUNraising activity would offer a unique event for corporate and business involvement.
To lift the fundraising burden from the shoulders of families and patients with cystic fibrosis. To raise awareness of cystic fibrosis, to alleviate suffering, advance quality of life and be sensitive to the needs of patients in Alaska.
- Growth from 10 to 30+ 5 person team participants
- Worked with Congressman Don Young to facilitate funding and opening of Clinical Trials for treatment of Mycobacterium Abscessus
- Multiple newspaper articles raising awareness of CF
- Research and Development Grant Allocation for research of treatment and cure for Mycobacterium Abscess
- Academic scholarships
- Activity scholarships